Thursday, January 14, 2010

What do Medical Students think of Down Syndrome?

I'm part of a local network of parents of kids with Down syndrome, and we had a doctor from the Trisomy 21 Clinic at the Children's Hospital of Philadelphia come to speak to us last night. She answered questions about potty training and aggressive behavior and communication and school inclusion. At the end of the night, I asked her how much communication they have with other doctors at the hospital. That is to say, how much influence does she have over the way her fellow physician's view children with Down syndrome?

She said something like, "Many of my colleagues believe that if you don't have an IQ of 130 or greater, your life is not worth living." (An IQ of 100 is normal, by the way, 130 is genius. Most kids with Down syndrome fall at the very low end of normal, or the high end of what is considered mental retardation, that is to say 60-80.)

We had an encounter a few months ago with some medical students who, to some degree, felt the same way. And I recently wrote an essay about that encounter that was published in the most current issue of the Christian Century. I hope you'll take a look: An Hour With Penny.

3 comments:

Jeannie said...

Thank you for this AJ, this is great. We're expecting our first in the next 2 months, and this is exactly the right perspective with which to begin the adventure of parenthood.

Margot said...

Penny has such a fabulous ministry & I hope she'll have many more opportunities to change hearts and minds. (Cuz, you realize, don't you, that that's your job now?)

Amy Julia Becker said...

Jeannie,

Congratulations! I do believe (now... it took me a long time...) that every child is a great gift, and I'm eager to hear about your son or daughter when she or he comes into the world!

And Margot, as always, thanks for being my encourager numero uno!

AJ